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This wide ranging and compelling account surveys the exciting opportunities and difficult problems which arise from the new human genetics. The availability of increasingly sophisticated information on our genetic make-up presents individuals, and society as a whole, with difficult decisions. Although it is hoped that these advances will ultimately lead the way to the effective treatment and screening for all diseases with a genetic component, at present many individuals are 'condemned' to a life sentence, in the knowledge that they, or their children, will suffer from an incurable genetic disease. This is the first book to attempt to explore and survey these issues from such a variety of perspectives: from personal accounts of individuals coping with the threat of genetic disease, from the viewpoint of clinicians and scientists, and from those concerned with psychosocial, legal and ethical aspects.

Medical genetics --- Génétique médicale --- Social aspects --- Moral and ethical aspects --- Aspect social --- Aspect moral --- Moral and ethical aspects. --- Social aspects. --- genetica (genen) --- genetische ziekten --- genetische counseling --- prenatale diagnostiek (prenatale test) --- kinderen --- predictieve genetische test (voorspellende genetische test) --- psychologie (psychologische aspecten) --- ethiek (ethische aspecten) --- génétique (gènes) --- maladies génétiques --- conseil génétique --- diagnostic prénatal (test prénatal, DPN) --- enfants --- test génétique prédictif --- psychologie (aspects psychologiques) --- ethique (aspects ethiques) --- Génétique médicale --- Medical genetics - Social aspects --- Medical genetics - Moral and ethical aspects

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The philosophy of the right to know and the right not to know, Ruth Chadwick; individual rights and genetics - the historical perspective - a comment on Ruth Chadwick's paper, Urban Wiesing; sociological perspectives on the right to know and the right not to know, Mairi Levitt; the meaning of "rights" in the right to know debate, Ingmar Porn; rights to know and not to know - is there a need for a genetic privacy law?, Tony McGleenan; autonomy and a right not to know, Jorgen Husted; do "all men desire to know"? - a right of society to choose not to know about the genetics of personality traits, Darren Shickle; mass meida and public discussion in bioethics, Ruth Chadwick and Mairi Levitt; living with the future - genetic information and human existence, Henk ten Have.

Human chromosome abnormalities --- Genetic disorders --- Disease susceptibility --- Medical ethics --- Dépistage génétique --- Maladies héréditaires --- Prédisposition morbide --- Ethique médicale --- Diagnosis --- Moral and ethical aspects --- Genetic aspects --- Aspect moral --- Diagnostic --- Aspect génétique --- -#GBIB:CBMER --- genetica (genen) --- erfelijkheid (erfelijke aanleg) --- genetische test (genetische zelftest) --- predictieve genetische test (voorspellende genetische test) --- genetische databank (genetische informatie) --- recht op niet weten (recht op weten) --- persoonlijke levenssfeer (privacy, bescherming van de persoonlijke levenssfeer, anonimiteit) --- autonomie van de patiënt --- ethiek (ethische aspecten) --- Human chromosomes --- Chromosome abnormalities --- -Moral and ethical aspects --- génétique (gènes) --- hérédité (disposition héréditaire, prédisposition héréditaire) --- test génétique (autotest génétique) --- test génétique prédictif --- banque d'information génétique (base de données génétiques, information génétique) --- droit de ne pas savoir (droit de savoir) --- vie privée (protection de la vie privée, anonymat) --- autonomie du patient --- ethique (aspects ethiques) --- Abnormalities --- Dépistage génétique --- Maladies héréditaires --- Prédisposition morbide --- Ethique médicale --- Aspect génétique --- Medical law --- #GBIB:CBMER --- Diagnosis&delete& --- Professional ethics. Deontology --- Legal theory and methods. Philosophy of law --- Moral and ethical aspects.